The First Anniversary

Written Feb. 16:

Saturday, February 12, was the first anniversary of Mom's death. It seems impossible to believe that it has been a whole year already.

The last few weeks have been difficult for me. Knowing the anniversary was so near, my emotions--all of them--have been right at the surface. It's hard to maintain a steady course when the waves are so constantly roiling.

When Mom died, there was the relief that now she would be at peace, and she no longer had to suffer. There were all the details of the death to handle, from getting the death certificate signed, to notifying family and friends, planning the memorial service, settling the estate, and all the other countless little things that needed attending to. There was adapting to life without her, without having to care for her, to arrange to have someone at home with her at all times, to dealing with (often fighting with) the health professionals and caregivers, and trying to figure out what is best for someone who could no longer communicate. Missing her was not immediate.

But now I miss her. As I continue to recover/uncover all of her, and not just who she was for the last few years as the Alzheimer's slowly robbed her of more and more of her functionality and her self, I miss that whole self more and more.

March 6:

I never finished that post, and now, today it is the one-year anniversary of Mom's memorial service. (On a side note, it is also the one-year anniversary of my friend Shelly's 52nd and final birthday party, the one I couldn't attend because of the service. Shelly died of pancreatic cancer in June). I have read in a couple of different places that it is the leading up to the first anniversary that is more difficult than the anniversary itself. That has certainly been true in my case. It seems that roiling emotions just relaxed into calm waters on the actual day of the anniversary.

Jeanne and I (and Cleo, the wonder dog) drove to Green Bay that day. It was the Saturday after the Packers won Super Bowl XLV, so of course our first stop was at the Packers Pro Shop at Lambeau Field. Someone asked what that had to do with remembering Mom. She and Dad had season tickets to the Packers games for all the years they lived in Green Bay. Mom preferred watching on TV, so when my brothers got older, they often went with Dad instead. Now they have inherited the tickets. Mom would sometimes tell me how when they first moved to GB, the games were still being played at the Green Bay East High School field. All four of us kids graduated from East. Cheering for the Packers was something Mom could still do even after watching most other TV shows became meaningless for her. Our visit to the Pro Shop may have been motivated by self-interest, but it's not like there are no connections to the Packers in my memories of Mom.

After the Pro Shop, we drove to the cemetery. The flat headstones were all covered with snow, so we trudged around in the vicinity of the grave, but under the snow was a layer of ice, so we couldn't dig through to the headstone itself. That was no big surprise, and it was okay. I don't need to see the marker to know it's there.

Then we drove to the nearby McDonalds to use the restrooms, and saw Kaap's Fine Candies next door. I won't go into the long history of Kaap's in GB, but will say that it was an old German restaurant, with a bakery and candy shop. Everything they made was out of this world. Otto Kaap is long gone, as is the restaurant with its dark wood interior on Washington Street, but the candy shop survives on Webster Avenue. Jeanne and I had to stop, and we picked out a pound of the best dark chocolate candy I've had in a very long time. And I eat a lot of dark chocolate! Even though I'd never been in this store location before, just being in a store called Kaap's, with pictures of the old restaurant, and the familiar candy boxes, brought a lot of memories back.

Positive memories (except for the bedevilment of knowing I may never again have a cheesecake like Kaap's used to make; that recipe was not saved when the original restaurant closed, and I've never seen a cheesecake like that--tall and light--again. What a loss!).

By the time we left Kaap's, it was snowing and getting dark, so instead of dinner at Titletown Brewery (a restaurant Mom was pleased to introduce us to), we drove home. All day long, I felt so calm, even peaceful, as cliche as that sounds. It was nothing like the emotional weeks leading up to this first anniversary. Go figure. The "grief book" was right on target about this.

And yet, it took me three weeks to write this. Ah, I'm sure it's just because I've been busy.

2011

Christmas has come and gone, and the new year has begun. It's zooming in on one year since Mom died, and more and more I have begun to miss her. Not just the healthy Mom, but also the Mom I cared for as Alzheimer's transformed her. I wasn't sure that day would ever come.

The holidays are always stressful; because I teach, I'm busy grading almost right up to Christmas, making preparations difficult. This year was worse, I confess. So one night Jeanne and I watched the slideshow we prepared for Mom's memorial service. It was very helpful. I find watching it healing. It gives me my mom back, through all stages of her life.

Mom & Paul (the oldest), circa Christmas, 1952

On a slightly different note, I read an exceptional article in the New York Times today. I don't keep up to date with reading about Alzheimer's, but when I do, their work seems to me the best and most relevant on the topic. Here is a link to the article entitled "Giving Alzheimer’s Patients Their Way, Even Chocolate": http://www.nytimes.com/2011/01/01/health/01care.html?ref=homepage&src=me&pagewanted=all

Jeanne and I did some of these things intuitively, like giving her a piece of chocolate as a treat. She could be at her most shut down, and we would say "chocolate," and she would put her hand out to receive it. But we were also incredibly vigilant about making sure Mom ate and did what was healthy for her more than what she wanted. I would have done a few things differently had I read this article 2 years or more ago. I recommend it highly.

So, all said and done, here's to a new year of grieving and recovery. I'm hoping for good things gradually developing.

I'm in the picture, so this is probably Christmas, 1959

The Six Stages of Grief

This last semester has been a struggle for me. My students have been good, thank the universe, but everthing else has just been difficult. I have been feeling inadequate, and as though I can't do anything right. I didn't really think it had anything to do with Mom's death. I don't remember experiencing anything like this when Dad died. Forget the fact that I'd always been much closer to Mom than to Dad. And the fact that I cared for Mom on a daily basis for the six years that she lived with us, that I was responsible for her, that I was with her when she died, that I helped clean her and dress her for the funeral home. It's taken me a couple of months, but I finally figured out that these feelings are a part of my grief. Kubler-Ross missed this one; the sixth stage is inadequacy.

And now that we have just celebrated Thanksgiving, I feel a grief that feels more like what I think grief should feel like. Our first major holiday (summer holidays don't count, and for some reason, neither did Easter) without Mom. We had Jerri and Dave and the grandgirls over for our traditional holiday brunch, and realized it was the first one without her. There was a lot less stress, not having to get her up, to feed her, toilet her, and get her down for a nap during this family time. And I felt my loss of her keenly. Then the realization that we were almost to my birthday, followed by Christmas. The first Christmas without her. That's something I'm not looking forward to.

We watched The Family Stone last night. I've seen it 3 or 4 times before, so I knew I was running the risk of a meltdown (if you are't familiar with the film, all I'll say is that it is about a family of parents and their adult children and partners getting together for Christmas. If you are familiar with the film, you don't need a spoiler to tell you why it was loaded territory for me). I didn't meltdown, but it was "helpful" in getting me in touch with my grief. I don't think I'm through with the inadequacy stage, but I am also moving into sadness, which according to what I read, is technically part of depression. That's where I would guess inadequacy falls, as well.

What I most have to remind myself is that there is no timeframe around when I should be "over" this. Some people have told me it took them 2 years to feel normal again after the death of a parent. I guess I shouldn't necessarily expect next semester to go more smoothly than this one. At any rate, grief is upon me, and rather than try to think ahead, I think I need to live today. Grief and all.

Next

Now that I am no longer caring for Mom, the obvious question is, what does this blog become? The title states its original reason for being. I wanted a place to write about and share what I was going through while trying to care for my mother as she was slowly dying of Alzheimer's. Now that she is gone, the answer seems clear--for now, at least. Now this is about grief. This is so much about grief that I thought it was too much, and I didn't post what I wanted to post in September. Let me take care of that now.

Two years ago, around Thanksgiving, one of our three cats suddenly became very, very sick. We first realized it on a Wednesday afternoon. We called the vet's office, described her symptoms, and they said we needed to bring her in right away. But here's the thing. It was our day with our granddaughters; Avri and Kiana were over. They were 2 and 4 at the time. And Mom had just gotten home from day care. There was no way one of us could handle all 3 of them. So we waited until Thursday, and Jeanne took her in while I was at school. They kept her over night, on IV fluids. We almost lost her. But she was a strong cat, our Juno, and she recovered. We had to give her subcutaneous fluids (think of kitty dialysis with an IV bag); I think we started with either every day or every other day. Eventually, we got her down to once a week, but she had kidney failure, so this was a rest-of-her-life thing. And pills, which I think she hated more than getting stuck with a needle and pumped full of fluids until she looked like a camel. But Juno was strong; the vet said she had never seen a cat recover as well as Juno did.

Then this September, she developed pancreatitis. She was throwing up, couldn't eat or drink, and eventually started an almost constant oozing of blood and runny stool. It was a mess. We became regulars at the vet's office, even stopping at her house a few times to pick up meds. But nothing worked, and on September 16, we took her in one last time. The vet took one look at her, and said, "She's ready. She's in pain, and she wants to go." We'd said most of our goodbyes at home, including having the other cats and the dog having one last moment with her. But said our final goodbyes, and the vet administered the shot. Our baby was gone.

I didn't feel I could write about Juno's death when it happened, not because I didn't want to, but because I felt that it was too much. Too much what, I'm not sure. Too much death, not enough balance. I am not a morose person, but sometimes I think this blog is. So why am I writing this now? I'm struggling (more on that in a later post), and I think I've found a new direction for the blog (sort of), and first things first. Juno is gone, euthanized 3 weeks before her 1th birthday. Her sister Selu is meowing at me as I write this, telling me to go to bed so she can go to bed with me. Sounds like a good idea, but first, my little Juno tribute.

The 3 girls in their youth

Juno

Juno and Selu, sisters, in one last photo

Happy Birthday, Dad

He would have been 88 today. His mother lived to be 90; she was the only biological grandparent I knew. Dad's dad died young. I think my dad was 17 when his dad died. I'll have to look it up. Dad died a month short of his 69th birthday, 19 years ago. And Mom died 6 months ago yesterday.

So many dates and anniversaries, I begin to wonder if there are too many to really mean anything, other than I get lots of memory prompts in the summer. They each mean a little less the farther I move away from them. I used to go to the shore of Lake Michigan and send Dad a Happy Birthday balloon every year on this date. After 3 or 4 years I stopped. I no longer felt that need.

Yet I also notice that I do not forget these dates. I make a point not to forget all these dates. They must mean something; in fact, I feel as though their meaning is probably fairly obvious. Maybe it's too close, staring me in the face, as they say, so that I cannot make out the relevance of remembering these milestones. Or maybe that's the point, remembering. Those casually tossed off "memory prompts" are the meaning. Wisdom has it that one mustn't live in the past. Ignoring the past is, on the other hand, ignoring what made us what we are in the present.

Whatever the meaning, the memories are here, as is the love (and the fights and the laughs and the dysfunction). Another milestone, more memories, another summer day.

Another milestone

When last I wrote, I mentioned that my dad's birthday is this week--tomorrow, actually. What I didn't even realize was that today, August 12, is the 6-month anniversary of Mom's death.

I had lunch with a friend/colleague today, a mutual friend of my colleague who died two months ago tomorrow. We talked a lot about death, and her aging parents (her mom has Alzheimer's). I would not say it was a morbid conversation, however, or even a depressing one. It was a necessary one, perhaps. What I have found, especially in these past 6 months, is that there are a fair number of people out there who will do anything to avoid talking about, and thus thinking about, death. Quite frankly, that doesn't work for me. Death is a natural consequence of life. To try to ignore it makes absolutely no sense to me. Acknowledging it, accepting it, even expecting it seems not only rational, but helpful. Being at my mom's side when she died was an incredibly grace-filled moment. I felt that she honored me by allowing me to witness that transition.

So a lunch conversation about death does not strike me as odd or morbid, but in many ways as helpful. Death happens.

And Mom, wherever you are now, it cannot be as bad as the hell of Alzheimer's, so I don't wish you back, but I do miss you. I hope that whatever place you are in, in whatever form you are in, it's giving you peace.

Pilgrimage

Monday, July 26, would have been Mom's 88th birthday. To mark the occasion, Jeanne and I drove up to Green Bay (with our dog Cleo). We hadn't been to the cemetery since Mom's burial and the engraving being finished. So I bought a plant, which is surely dead by now unless "neighbors" are watering it, and placed it on the grave. Here is a partially shaded photo:

We didn't stay long at the cemetery; there's not much to do there. So we cruised past Mom & Dad's old condo. We also found my childhood home, which got moved when the YWCA bought the lot for parking. I knew what street they moved it to, but not which block. So we drove up the street until I recognized it; it's a big house, and had a few identifying features that made me confident that I'd correctly identified it. That was enjoyable; I loved that house. We also drove past my old high school, to make sure the headless children still had their heads reattached (long story, but one that always brings a smile. I may have to tell it some day, as Mom has a significant role in it).

Then we picked up some lunch, and had a little picnic at a park by the river. It felt surprisingly freeing to be in my home town with no agenda, no one to have to see, nowhere to have to be.

And then we drove home. I did not feel overtly emotional that day, but I could feel the next day that things were not their placid normal selves. Not much more to report than that. Getting ready for Dad's birthday next week. As I mentioned in my previous post, this is the season of remembering for me.