Kiana, Mom, and Avri
Dec. 2009
I was ready to write again the day after my last post. Guess what? It didn't happen. I'm always waiting for the correct amount of time and energy, never quite figuring out that I need to write what I can when I can, and let the rest fall by the wayside. Let's see, I was going to write about the visit to the neurologist, the last two respite stays for Mom, Christmas, and I don't even remember what else. My brother's visit. Oh, yeah, getting fired from daycare over a parking dispute. Mom is now home with us 24/7. I hope to be able to write about some of this at some point.
We brought Mom home from respite today. When we checked her in on Thursday, they weighed her. She was down to 78 pounds, fully dressed, including shoes. She still eats and drinks, but less and less all the time. The neurologist says she isn't metabolizing everything she is eating. She sleeps most of the time, which does make having her home all the time a little easier.
The picture above was actually taken a week before Christmas. Jerri and Dave were taking the girls to Florida for their first DisneyWorld visit, and didn't want them to leave without saying goodbye to Mary. There was some concern that she wouldn't make it to Christmas. You can see from the picture that she was momentarily awake and alert. She had already tuned back out before the next picture.
Anyway, when Mom came home from her December respite, she had deteriorated significantly, and we were no longer sure she would make it to Christmas. Jerri and Dave knew Kiana in particular would be upset if she didn't get a chance to say goodbye, and I wanted a last picture. Well, as usual, Mom rebounded, and though she's still losing weight, she is also still here, and shows no signs of dying this week. That's about all we can predict.
And about all I have time to write tonight. As my subject line says, my new approach to blogging (for today at least) is now or never. So this isn't much, but it's better than nothing. I hope to write more again soon.
